Well Its another Labor day weekend

SlickRick · 2003-09-01, 10:39 AM

Cleo,

I understand Death, kills 100% of its victims. And I fully aggree with you when you say "Bring on the research". Be it for my own selfish reasons. I am sick and tired of not being able to do the simple thigs like stepping up on a curb without having a kruch; for example: using my car to push my self up to higher ground.

But until the price goes down on this so called research, they the medical professionals within the MDA. I was watching and they said that $5,300 raised only pays for 100 minutes of research time. The cost must be lowered.

My opinion the only people benifiting from this is the medical professionals and their bank accounts.

As far as Stem cell research I honestly dont know much about it. But I would be first in line if they wanted to test it on people.

Its a bit dificult when they only proform about 3-4 test a year on people, and thats a blind placebo test so out of 4 gorups with 12 in each group thats only 48 people. Now with a blind placebo test only half of the 48 people get the actual drug the other 24 peeps get a friggen suger pill.

My last appt at MDA was about 4 years ago. I went in to have a DNA test to make sure I had what they told me I had orginally. From over the years of seeing Drs they told me that no one at my age (then) with the form (I wont say I suffer from, I have no pain what so ever.) of Muscular Dystrophy I have, is still able to walk.

My point behind this is the genetic counselor I saw told me flat out that there wont be a cure in my life time. I had to ask where the research money was going then. She told me in some medical gargon, which I didnt understand, and asked her to clarify that for me.

So in my words of how she told me how they will iradicate this.

If I was married and wanted children (The non-traditional way) they would take my semen and take the defective MD jene out and then inseminate the wife.

Again this is no cure for me or the 40 million others that have this diseases.

So where is the money really going?!!!
I have no fucking Idea...

I think I've babbled on long enough here, I am going to get back to work.

2003-09-01, 10:39 AM	#6
SlickRick I've always wondered if there was a god. And now I know there is -- and it's me Join Date: Aug 2003 Location: Kingman, AZ Posts: 329	Cleo, I understand Death, kills 100% of its victims. And I fully aggree with you when you say "Bring on the research". Be it for my own selfish reasons. I am sick and tired of not being able to do the simple thigs like stepping up on a curb without having a kruch; for example: using my car to push my self up to higher ground. But until the price goes down on this so called research, they the medical professionals within the MDA. I was watching and they said that $5,300 raised only pays for 100 minutes of research time. The cost must be lowered. My opinion the only people benifiting from this is the medical professionals and their bank accounts. As far as Stem cell research I honestly dont know much about it. But I would be first in line if they wanted to test it on people. Its a bit dificult when they only proform about 3-4 test a year on people, and thats a blind placebo test so out of 4 gorups with 12 in each group thats only 48 people. Now with a blind placebo test only half of the 48 people get the actual drug the other 24 peeps get a friggen suger pill. My last appt at MDA was about 4 years ago. I went in to have a DNA test to make sure I had what they told me I had orginally. From over the years of seeing Drs they told me that no one at my age (then) with the form (I wont say I suffer from, I have no pain what so ever.) of Muscular Dystrophy I have, is still able to walk. My point behind this is the genetic counselor I saw told me flat out that there wont be a cure in my life time. I had to ask where the research money was going then. She told me in some medical gargon, which I didnt understand, and asked her to clarify that for me. So in my words of how she told me how they will iradicate this. If I was married and wanted children (The non-traditional way) they would take my semen and take the defective MD jene out and then inseminate the wife. Again this is no cure for me or the 40 million others that have this diseases. So where is the money really going?!!! I have no fucking Idea... I think I've babbled on long enough here, I am going to get back to work. __________________ Please Re-Read The Rules For Sig Files