Going to be really scarce for a little while.

Jim · 2008-04-04, 10:12 AM

We finally have an update. Damn, I really didn't say much in that first post did I?

I am going to try to keep this short. The dizziness is being caused by cancer going to my wife's brain lining and spine. There have since been a lot more problems than just being dizzy. It seems that there is only 1 treatment available and that is in clinical trial at Sloane Kettering in NYC. And, that treatment is only available if there were antigens attached to the cancer cells. 25 days or so ago they took a lymph node and sent it to NYC to see if these antigens were there. We were told it was about a 10 day turn around and we found out the day before yesterday (well over 20 days) that the antigen was there.

I was told when I found out that we would have details in about 4 days after our insurance approved the trial. That's where we are....

I have no idea how this will work. I know it involves a 9 week hospital stay but I don't know really how long we will be in NYC. I am guessing about 3 months but I could be way off. We could be leaving as soon as Monday but I suspect the following week for some reason.

Obviously "scarce" is not the word to use while there. I think the word would be "gone" or at least, "very scarce". I did purchase a new laptop for the trip(s) but still... I think there may be more pressing things going on.

2008-04-04, 10:12 AM	#1
Jim Banned Join Date: Aug 2003 Location: Mohawk, New York Posts: 19,477	We finally have an update. Damn, I really didn't say much in that first post did I? I am going to try to keep this short. The dizziness is being caused by cancer going to my wife's brain lining and spine. There have since been a lot more problems than just being dizzy. It seems that there is only 1 treatment available and that is in clinical trial at Sloane Kettering in NYC. And, that treatment is only available if there were antigens attached to the cancer cells. 25 days or so ago they took a lymph node and sent it to NYC to see if these antigens were there. We were told it was about a 10 day turn around and we found out the day before yesterday (well over 20 days) that the antigen was there. I was told when I found out that we would have details in about 4 days after our insurance approved the trial. That's where we are.... I have no idea how this will work. I know it involves a 9 week hospital stay but I don't know really how long we will be in NYC. I am guessing about 3 months but I could be way off. We could be leaving as soon as Monday but I suspect the following week for some reason. Obviously "scarce" is not the word to use while there. I think the word would be "gone" or at least, "very scarce". I did purchase a new laptop for the trip(s) but still... I think there may be more pressing things going on.